The Zen of Alan Alda

It would be easy to write about Alan Alda by only recounting stories that everyone already knows, such as his tremendous successes in television, movies and theatre. I could also discuss his well-known talents as a gifted writer of books and screenplays, or his lifelong passion of science that led him to not only host PBS’s “Scientific American Frontiers” for 14 years but to challenge young minds and inspire the creation of The Center for Communicating Science at Stony Brook University.

MS Advocate Cathy Chester with Alan Alda

But Alan Alda is much more than that, and writing about only those achievements, as incredible as they are, would be a disservice to him. He has always been like a cauldron packed tight with ingredients of passion, ideas and deep thought that would burst wide open if he couldn’t keep moving forward.

As I listened to him speaking recently at The New Jersey Speaker Series it occurred to me how Zen-like Mr. Alda is. He sees his life experiences with great clarity and, after examining them like a true scientist, he challenges and questions himself, then draws his own conclusions.

Alan Alda

I can best illustrate the Zen of Alan Alda by using three stories from his words and life experiences.

Near-death experience changed his life: Story One

There was one night that forever changed his life, and he uses that near tragedy to contemplate how he became the man he is today.

“I’d like to tell you about a night that changed my life. I was up on top of a mountain in Chile, in an observatory because I was with astronomers doing a science show, and I got this tickle in my gut, and within a few minutes it was the worst pain I had ever felt in my life. They had a medic up there. I don’t think he’d done anything medical before. I’m all doubled up and he comes over and says, 'How are you?'

"They had an ambulance, a big old boxy thing. It looked like the ambulances we had on M*A*S*H. They slide me into the ambulance and I’m groaning and screaming and they take me for an hour and a half down this rocky mountain down to this little town to a hospital with a dimly lit ER.

"But there was this brilliant doctor there that night who was an expert in what was wrong with me. It turned out I had a bit of my intestine that lost its blood supply and if it burst a couple hours later I’d be dead. But he knew exactly what the problem was and he figured it out in a few minutes. He leaned into me to tell me they have to cut out part of the bad intestine and sew two good ends together.

"And I said, 'Oh, you’re going to do an end-to-end anastomosis?' He said, 'How do you know that?” and I said, 'Oh I did many of those on M*A*S*H.'

"And I lived.

"And when it was over I felt I’d been given a whole new life. The world was so fresh, the colors were so free, just the feeling of being alive. I wasn’t supposed to eat anything solid, and the first piece of cheese I had was the most delicious meal I’d had in my life. I was like a newborn baby tasting everything fresh.

"So I thought I don’t want this to end. I’ve met people who had near death experiences and they kept that feeling for a while but then it went away. I didn’t want it to go away. How can I make this last?

"Maybe if I think about how I got to be how I am, and who I am, and the lessons I’ve learned, maybe there’s something in that. So I started making notes about my earliest childhood memories.”

Alan Alda speaking on the life-changing power of tragedy

Alan Alda speaking on the life-changing power of tragedy

Life moves on after tragedy: Story Two

When Mr. Alda was seven years old he contracted polio, a horrible deadly disease and an epidemic among children at that time. He remembers his father administering painful treatments that included placing hot woolen blankets on his limbs and painful massages on his muscles.

While recovering, Robert Alda brought home a beautiful black cocker spaniel to cheer up his son. The dog was so sweet and loving that they immediately fell in love with each other. When the puppy tragically died his father, in a loving but perhaps misguided effort, had the dog stuffed for posterity so he’d “always have him.” But the dog had a “hideous expression with glass eyes that followed you wherever you walked” and after placing it next to the fireplace, “when guests entered the room they’d stop dead.”

I realized years later that this was a tremendous lesson for me. You can’t have your dog stuffed. I know that sounds trivial but it’s true. You love the dog, he goes away, and you move on. The stuffed dog is a counterfeit; a hollow imitation.”

Moving On: Story Three

Someone from the audience asked what he thought Hawkeye Pierce would be doing today. Alda answered that he never thought about it. As much as he loved the character and was proud of the part he played in creating eleven seasons of M*A*S*H, when it was over, it was over. And he moved on.

Beyond the Zen of Alan Alda is the love everyone feels for him. I have never met anyone with an unkind word about him.

Meeting a personal hero

As a devoted fan I’ve written about him before. About my schoolgirl crush that turned into deep respect for a man completely devoted to his family and friends, one who always seemed genuine and self-effacing whenever I'd hear him speak.

I was more than thrilled when my husband and I were invited to attend a post-event cocktail party to meet Alan Alda in person. I was admittedly a bit nervous. I’ve met celebrities before, but for me this was different.

I didn’t want to sound like a gushing teenager or a typical fan. I wanted him to know how important the work he is doing at Stony Book University is to the disability community and me. So I practiced my elevator speech. Several times. Okay, more than several.

When it came time for us to meet him one-on-one, my instincts were right. It was as if my husband and I were alone in the room with a dear friend. He listened intently as I thanked him not only for his funny and fascinating talk, but also for the contributions he’s making by teaching future scientists how to communicate more effectively with the public, and what that will mean to the future of medicine.

Although our conversation lasted only a few minutes it will leave an indelible impression on my heart.

Alan Alda speaking at Fairleigh Dickinson University

Alan Alda speaking at Fairleigh Dickinson University

END NOTE: I also introduced myself to Arlene Alda, who is an accomplished musician, photographer and writer. Her latest book "Just Kids from the Bronx" is an oral history about what it was like growing up in the Bronx, a place that "bred the influencers in just about every field of endeavor today." It will be coming out March 2015. I wanted to tell Mrs. Alda how excited my Bronx born mother is about reading her upcoming book. Mrs. Alda was lovely, and it was a pleasure to briefly speak with her.

The New Jersey Speaker Series is an inaugural series of talks produced by Fairleigh Dickinson University. The impressive list of speakers are Madeleine Albright, Alan Alda, Steve Wozniak, Olympia Snowe, David Gergen, David McCullough and Dan Rather, each influential voices in our world today.

Photo Credits: Courtesy of Fairleigh Dickinson University/New Jersey Speaker Series

When I Walk: A Documentary Premiering On PBS Is An Honest Look At Life With MS

The film “When I Walk” by filmmaker Jason DaSilva will premiere on PBS on Monday, June 23, 2014. It was an Official Selection at the 2013 Sundance Film Festival, and the Best Canadian Feature at HotDocs, 2013. Original music is composed by Emmy award winner Jeff Beal (read my interview with Jeff about his MS journey here.) I was provided with a complimentary copy of the film.  All opinions expressed are strictly my own.when i walk documentary film

By the age of 25, Jason DaSilva was a young man blazing his own trail as an accomplished documentary filmmaker, picking up an Oscar nod along the way for his film “Olivia’s Puzzle.” His talents as a documentarian were evident as his star began to rise with several well-reviewed films under his belt.

He seemed unstoppable.

Jason enjoyed an active social life that was typical of a young man living in Manhattan, enjoying the vibrancy of an exciting city with friends and family.

All of that was about to suddenly change forever.

when i walk film documentary

Jason enjoyed capturing his life on film. Bringing his camera along on a day at the beach at a family outing was typical. But this particular day would be different. Jason had no way of knowing that while he was busy documenting his life, something terrible was about to happen.

While walking on the sand, Jason suddenly fell to his knees.  As hard as he tried, he couldn’t stand up.  For the first time in his life Jason was totally helpless, forcing him to rely on others to get him back on his feet.

This was the beginning of Jason’s next journey.

Jason received the devastating news that he had primary progressive Multiple Sclerosis, a form of MS that steadily worsens without any distinct relapses. He soon realized that filming his journey would be unprecedented; he was the perfect person to illustrate what it was like to live a life with a degenerative disease.

This film is a dedication to Jason’s struggle, and I applaud his indomitable spirit that he displays with his broad smile and genial manner while facing each day with more obstacles than the one before. He exposes himself to us on film, and we are a silent audience helplessly watching this lovely, vibrant man bravely face the horror of his disease.

“When I Walk” is an extraordinary piece of art, bringing us along on Jason’s journey, watching him slowly lose the ability to walk, to see and to maneuver a city that can be inaccessible and unkind to someone with a disability.

What struck me about this film is Jason’s unwavering honesty and his life-affirming outlook on the joy of life.  We watch him laugh and cry, always relying on his strong inner spirit to guide him with the harsh realities of living with MS.  His family envelops him, and I was particularly touched by how spiritually strong his mother was, taking care of his physical, emotional and spiritual needs with tough love.

Alice, Jason’s new wife, is his partner in every way. She, too, shares her honesty about life with a husband who is living with an incurable disease.  Her dedication to Jason is touching to watch, from their courtship to their wedding, and then onto trying to start a family. A tragic miscarriage at a hospital that was inaccessible to Jason was heartbreaking to watch.  But then some good news. Well, you’ll have to watch the film!

when i walk film documentary

While traveling around the world in a quest to find a miracle – healing waters, meditation, yoga – we witness Jason trying to find a cure, searching for a way back to the life he once knew.

In the MS community, Jason is a giant among us.  He has been telling his story since his diagnosis, and I have had the good fortune to read his story and hear about his ventures for a long time.  His film has been highly anticipated because it tells our story to the non-disabled world.  We not only applaud Jason for his efforts, but also thank him for creating this documentary.  Educating others about Multiple Sclerosis is important to us, because we want them to know that we matter, we add great value to the world, and we are more than our MS. We continue to keep hope in our hearts that a cure will be found in our lifetime.

“These days, I’m working on developing AXS Map, a crowd-sourced online tool for sharing reviews on the wheelchair accessibility of buildings in New York City. And while I miss the incredible spontaneity and unlimited access to the city I once had, my diagnosis was not the end of the world….it has provided a new way for me to see and be in the world. This was the basis for the voice and heart that emerged in the film.” ~Jason DaSilva, Director/Producer

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