As a child I could run, play the game "tag" or "kick-the-can" with the neighborhood kids, ride my bike from town to town, and when I was older squeeze a lot into a day without napping. But in 1981 that all changed when my right leg and hands became weak and numb, walking was difficult, I’d lose my balance and fall to the floor, and unrelenting fatigue confined me to bed. 

By the time I was twenty-eight, my symptoms were worse and I consulted a neurologist. He ordered a ct scan and spinal tap that immediately revealed I had multiple sclerosis.

I was shocked, angry, overwhelmed and scared. There was no FDA approved MS medications and the internet was in its infancy. I felt alone with nowhere to turn for help.

Those were the darkest days I’ve ever known.  My diagnosis changed the trajectory of my journey as I headed down an alarming blind path.  

Today at the age sixty, I reflect on over three decades of surviving, evolving, regrouping and flourishing. As my symptoms progress incrementally there are certain attitudes I’ve adopted over the years that I lean on:

• There’s nothing I can do to change the fact that I have MS, so be grateful for the abilities I still have.
• I can keep abreast of the latest research and findings that may help my symptoms. 
• No matter what I face I hold onto hope, positive thoughts and the realization that I can battle this disease like the true warrior I am. Thirty-three years have proved that.
• I won't allow MS to define who I am.
• Living a life of purpose and compassion fills my soul, and how I face my illness may be an example for others to face theirs.  
• My new normal revealed from the start that advocating for others in my community is my life’s mission. If even one person says I’ve made a difference in their lives, then I am the happiest woman there is.

Why am I retelling my story? To quickly reiterate who I am, what I do, why I love being an advocate and Patient Leader and what I actively want to see happen, that is precision medicine, a better quality of life for all and a cure.  

There’s much more I could tell you about all the work I’ve done as an advocate, writer, speaker, and consultant since my diagnosis but I'll save that for another time. For now, I'd like to ask for your generosity and support.

If you've liked any of the work I've done over the years please support my advocacy by endorsing me for LIFETIME ACHIEVEMENT for the WEGO Health Awards. These awards recognize those who are making a positive impact in the online health community.

Your support can help send me to Las Vegas to be featured on healthcare's biggest stage. It could allow me to speak to industry leaders and up my game as a Patient Leader. 

Please click here to vote for me. 

Whatever you decide I appreciate you being here at An Empowered Spirit. You obviously care about someone living with MS. Thank you for your open and kind heart. You are making a difference.

I've been living with MS and advocating for others for 33 years. My mission is to empower, educate and inspire others to live the best life possible within their abilities.