The Lessons We Learned From MS, COVID, and Each Other

Welcome back to An Empowered Spirit! I'm so happy you're here.

After taking a break from blogging for nine months I'm back and it feels wonderful being here with you.

The past two years have been so crazy that we all needed a break of one sort or another, don't you think? Sometimes it feels like we're living in a Robin Cook novel.

cat with big green eyes hiding under a blanket

Wake me when it's over!

One of the lessons we learned from the pandemic is how crucial it is to have a safe place to be nurtured and cared for when the world feels cold and out of control.

After I was diagnosed with MS many years ago, I searched for the best ways to cope with my new reality. It took a while, but I started finding answers to what I needed. When I created An Empowered Spirit, I wanted to share these insights with you on what helped me feel less lonely and afraid. The most important first step was finding the right...

Community.

There's magic and power in finding the right community, where people feel safe to tell their stories and share their feelings. The right community can offer unconditional support and comfort, and when you find that it feels damn good.

multiple sclerosis community

The power of community is the comfort and unconditional support you find with others

This year marks the tenth anniversary of An Empowered Spirit! A lot has changed in the MS landscape since 2011. What hasn't changed is my continued commitment to being a reliable source for you for all things MS!

To celebrate our anniversary we've updated An Empowered Spirit thanks to a generous grant from the HealtheVoices Impact Fund. I'm deeply grateful to HealtheVoices and Janssen for their continued support and generosity.

Multiple Sclerosis Blog Anniversary 2021

When I received the grant it was the nudge I needed. I'd been feeling burnt out from blogging, lost, and wondering what I should do next. HealtheVoices unknowingly pushed me into the "stop overthinking everything and just do it" mode.

So I'm getting off my tush to move in new and different directions for the next ten (+) years.

Like Michael Fox recently said about his journey with Parkinson's, it gets tiring to constantly make lemonade out of lemons. I quite agree. At this point in my life, I see a lot of things about life and MS differently, so I'll be focusing on topics with a fresh perspective. What will they be?

Wait and see!
MS
I'm busy planning new content to serve your needs, in creative. inspiring, and informative ways.

In return, I'd appreciate constructive suggestions or thoughts on what you're interested in hearing about. You can leave a comment below or reach out via the contact page.

What's new on An Empowered Spirit:

The new design of the blog reflects my love of every type of flower. They are beautiful and thrive despite adversity, just like the MS community.

Sixteen peony bushes are part of nature and this blog

My father planted sixteen peony bushes along our driveway. Here they are for your viewing pleasure.

“Like wildflowers, you must allow yourself to grow in all the places people thought you never would.” – E.V. 

Cathy Chester - MS Advocate - New Blog Header

CLICK on the HOME, ABOUT, MS RESOURCES, PRESS, and CONTACT buttons located at the top of the page to find exactly what you need.

"Out of suffering have emerged the strongest souls; the most massive characters are seared with scars." ~ Khalil Gibran

Disability and multiple sclerosis accessibility tool

NEW! An accessibility tool is located on the top left corner of every page to make pages more usable for you.

My mission continues to be to empower, inspire, and educate the multiple sclerosis and disability community, and their loved ones.

Now onto a special SURPRISE to start the celebration! Here's my first interview to christen the new blog. Drumroll, please...

After being interviewed twice by MS advocate, actor, voiceover artist, writer, and rapper Damian Washington I turned the tables on him. I chose Damian because he's smart, savvy, and very funny.

As Damian says, if you have to live with an incurable disease you may as well hang out with the cool kids.  He's definitely a cool kid.

Damian soared to the top of the advocacy game at warp speed and recently won TWO awards from WEGO Health: Hilarious Patient Leader and Best in Show: YouTube. Let me know what you think about our conversation.

 

With a party hat on and a grateful heart, thank you for helping us begin the next chapter of An Empowered Spirit in the best way possible: together. I've been enriched and inspired by your company and hope to see you return again and again.

END NOTE: Thanks again to HealtheVoices for your leadership program that supports the work of online health advocates. Your dedication and commitment to us are deeply appreciated.

 

How James Stewart Taught Me How To Heal

Before taking the role of George Bailey in "It's a Wonderful Life" James Stewart took a break from acting after serving his military service. The war changed him and he needed time to recoup and heal. From then on the roles he chose reflected a much deeper and multidimensional persona.

"It's a Wonderful Life" was James Stewart's first postwar film.

In the scene when George Bailey contemplates suicide the director Frank Capra noticed something new in Stewart's face, something deeply raw and thoroughly human. As Capra watched Stewart's Bailey pray to "Father in Heaven to show him the way" the director wanted to capitalize on this heartbreaking performance. He spent hours editing the film so the final cut would show the audience what he saw. The angst of a soldier.

James Stewart's career took on a new trajectory.

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In a smaller sense I can understand how James Stewart felt. I don't claim to have experienced anything like the violence and tragedy of war. But if emotions mold a person then there's the parallel.

I'm fighting a different kind of war, one that involves a kind of loss. Loss comes in all different forms, mostly beyond our control. Today I see life through a different lens.There's no going back.

Recent events changed me in ways I never imagined. The Utopian life I dreamed about as a child seems unreachable. Joy, grace, gratitude and hope feel distant and unattainable.

I need to regroup. I need to rest. I need to think. I need to heal.

MS is a cruel dictator. It has the power to decide at any given moment to erase pleasure from your life. It can remove physical and spiritual abilities and frighten you beyond all measure. When that happens you don't recognize yourself.

As the stress of our move lingered and the dismal outcome of the election hung in the balance my body began to ignore my pleas of mercy. Numbness and weakness descended, and with it the ability to walk or care for myself properly.

I'm living with the consequences of too much stress while living in a place we're unhappy with. Our buyer pressured us to move and we had no choice. This small, dark townhouse with its thin walls was the "pick" of the litter since there are currently more renters than inventory.

Everyone tells me to rest and that's exactly what I've been doing. For a week I've stayed in my pajamas and watched television (my MS induced cog fog prevented much else) while my husband does all the work.

I cancelled our vacation (my 3rd cancellation this year.) I also cancelled Thanksgiving gatherings. Me and the hubby ate chicken and rice while watching TV in our pajamas. Not exactly the romance of yesteryear...

heal

The election results haven't helped. Those who know me best know how I feel about that. I can't imagine anything productive or kind coming from the next administration and I fear for our country and its citizens.

It's frightening to experience life beyond our control, to sit in the passenger seat unable to control the steering wheel. You can't avoid the bad guys.

I long for my "normal" life when I can walk where and when I want, for as long and as fast as I can, without fear of fatigue or falling.

I want to travel again - anywhere - with my head held high without fear of repercussions from a country that is so divided.

Words fail me at the moment so I'm not sure how to end this post. I have no neat little ribbons to tie it in or inspiring prose to offer you.

As a writer I want to use words to soothe you. As a woman I want to say women will be treated with respect and dignity. As a patient I want to inspire others through my strong example, with hope for better research, alternate options for wellness, affordable healthcare and cures.

As a human being I want to spark others into action to fight for what's right and good and to pray for the peace we richly deserve. And never, ever give up.

Despite all of this I have to believe, I must believe, there is more good in the world than evil and that good will always prevail.

I must believe my body will prevail. Positive thinking and a warrior attitude that nothing will get in my way. No matter how long it takes.

I'll continue to advocate for my health and the health of others. I'll also advocate for the health of our country.

Hope, joy, gratitude and grace will appear at my doorstep again. While I'm waiting for their appearance I'll hold tight to the loving family and friends holding me up. They've never given up on me. They strengthen my resolve to fight for a better, healthier and saner world.

As Uncle Henry used to say, I hug you with my words.

(A footnote, pun intended: The feeling on my left side is coming back! I'm excited about that. Small victories are truly big ones.)

Thanks, James Stewart.

 

 

 

 

 

Four Simple Ways You Can Create Better Brain Health

In 1981 I was in a serious car accident that I don’t remember. After an oncoming car crashed head-on into ours I passed out. When I finally woke up I was lying on a stretcher with my girlfriend hovering over me. Her facial expression was a mixture of I’m so happy you’re not dead and don’t worry, everything will be all right.  

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The deep gash in my forehead required sixteen stitches, and my parents admitted me to our local hospital for the doctors to run tests. Although I had a serious concussion I was released a few days later after the test results were negative.

Six years later I was diagnosed with Multiple Sclerosis.

Multiple Sclerosis is a disease of the central nervous system that disrupts the flow of information between the brain and body. One of those disruptions can be a change in cognition; approximately half of people diagnosed with MS develop problems with it. Memory, attention and concentration, information processing, verbal fluency, visiospatial functions (visual perception) or executive functioning (prioritizing and planning) can all be affected.

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After my diagnosis I got busy with life. Marriage, motherhood, writing and volunteering were my priorities. I didn’t have time to think about what was going on in my brain. Of course there were obvious physical ailments manifesting from my disease. But after awhile I didn’t think about them; they simply became part of who I was.

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According to The National Institutes of Health:

“Aging causes changes to the brain size, vasculature, and cognition. The brain shrinks with increasing age and there are changes at all levels.” 

The website Psychology Today goes a step further by saying:

“We now know brain function need not decline with age, at least for people who stay healthy and mentally active. By the way, research shows that a lifetime of vigorous learning helps prevent or delay Alzheimer’s disease.”

Concussion. Disease. Aging.

I guess I’m living with the trifecta of possibilities why I sometimes can’t remember a name, what I ate for dinner last night or what I was just about to say. My brain has been shaken and stirred, and is aging every second of every hour of every day.

Enter Ruth Curran, a blogging friend I fell in love with after meeting two years ago. Ruth has been my guru for inspiration and information on brain health. She's an expert on the subject as an author, speaker, entrepreneur and brain game creator.

She’s also a brain injury survivor.

Ruth has more grit than most people I know. After a serious car accident she spent 18 months struggling to complete sentences and thoughts. After feeling frustrated she decided that she needed to do something to regain her quality of life. So she went back to school to get her Master’s degree in cognitive psychology!

Ruth discovered through her own personal experience (plus she struggled while both of her parents suffered from cognitive decline) that cognitive puzzles can help people regain some cognitive control.

That catapulted her to create her incredible website Cranium Crunches.

After getting to know Ruth's story and her work I realized that some of my cognitive difficulties may be a result of my concussion. (NOTE: Today a concussion is defined as a traumatic brain injury.) I doubt I’ll ever know if my brain blips are from age, disease or injury.

We all want to avoid losing brain power as we age. What's the solution for staying brain healthy?

Here are four ways I’m waging a personal war against brain dysfunction. I want to age gracefully and keep my brain cells as healthy as possible. Are you waging your own war?

Games, puzzles and teasers: I enjoy spending time on Ruth’s website, Cranium Crunches. It’s a fun and easy way to keep your brain in shape with amusing games and teasers that are so pleasurable. And while you’re there tool around the site to learn other ways you can keep your brain healthy.

Learn a new skill: Stretching your brain means learning something new, something that’s unlike anything you’ve learned before. My latest addiction is Periscope, a new and exciting app owned by Twitter that allows users to stream and watch live video broadcasts. The user has the ability to ask the broadcaster a question by typing a message in real time. I’m trying to learn all about Periscope (and gather up my courage) so I can begin creating my own broadcasts.

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This is my Periscope profile

Crossword puzzles on the go: I’m currently playing seven separate Words with Friends games on my iPhone. Since my phone is always with me the puzzles are easily accessible no matter where I am. It’s a great way to keep my mind active.

A study from the Archives of Neurology “.. found people who kept their brains active most of their lives by reading, writing, completing crossword puzzles, or playing challenging games were a lot less likely to develop brain plaques that are tied to Alzheimer’s disease.” ~CBSNews.com (January 24, 2012)

Reading: I've always been a voracious reader. The best way to keep our minds active is to read, read, read. In my line of work I do a lot of research. Much of it is medical jargon so I’m learning new terms every day. Reading, processing and storing new information has a positive impact on our brains.

“Neuroscientists have discovered that reading a novel can improve brain function on a variety of levels. The recent study on the brain benefits of reading fiction was conducted at Emory University. The study titled, 'Short- and Long-Term Effects of a Novel on Connectivity in the Brain,' was recently published in the journal Brain Connectivity.” ~ Psychology Today

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Check out Ruth’s new book, Being Brain Healthy: What My Recovery From Brain Injury Taught Me and How It Can Change Your Life. As Ruth says it’s “..about taking what is right in front of you and using it to nourish your brain and enhance your life.”

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How To Create A Brilliant List To Maintain A Brilliant Life

I can't imagine my 56th birthday being more brilliant. Spending an entire day in the company of my husband and son while having their undivided attention -  no Sports Center, stock tickers, political arguments or social media - was something I was more than looking forward to.

In our family the birthday girl or boy chooses how they want to spend their special day. More times than not I've wanted to do something cultural in Manhattan. So I gave my husband a list of plays I wanted to see, and he and my son took care of the rest.

Every Brilliant Thing

We went to the small theatre-in-the-round, the Barrow Street Theatre, to see the creative and interactive one-man show, "Every Brilliant Thing." The play is about a young boy growing up who does his best to distract his suicidal mother by creating a list of joyful things that make life worth living.

This hour-long play stars the charmingly funny Brit Jonny Donohoe who creates a character that is bright, funny and engaging, something that's not easy to do considering the subject at hand. Yet Donohoe handily succeeds.

As an emotionally damaged boy who never stops searching for a happier life, we, the audience, interact with the story according to the lines and roles Donohoe assigns us when we first take our seats. His poignant and honest depiction of how suicide affects a family makes us laugh and cry as we remain ever hopeful that both mother and son will survive intact.

(Not to give too much away, but our favorite brilliant thing on the character's list was, "Christopher Walken's voice....and hair." Ha!)

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Like any dedicated blogger, as I sat and watched the play my mind began to race.  How could I write about brilliant lists for my blog? Then it dawned on me: Wouldn't it be wonderful if everyone would create their own brilliant list? A list that would make them feel happy to write and joyful to read?

Your list will never be finished, because as we age and experience more and more life lessons, we add our positive experiences to our brilliant list. Just like the main character in the play, there are thousands and thousands of reasons why every brilliant thing we love - everything that makes our heart sing or brings a smile to our face - makes a positive difference in our lives.

So on days when you're having some self-doubt or perhaps feeling a little sad, you'll have your brilliant list to comfort you. It will serve as a reminder of the things that matter most -  the simple joys that make life worthwhile.

Here are some things that are on my brilliant list. In the comments below I'd love to read what's on your brilliant list. Remember, there is no right or wrong. It's whatever feels brilliant to you!

What's on your brilliant list?

 

Can You Feel Better On A Gluten-Free Diet? Take Notes Jennifer Lawrence

A few weeks ago I stopped following The Jenny Craig program. Since then I’ve been on a quest to find a “way of life” meal plan to follow. It was easy to follow their program. Five minutes before it was time to eat, I’d pop an entrée into the microwave, make a side dish and BAM! My delicious meal was ready to eat.

Diet Gluten Food Meal

Now I have to carefully plan my meals, and since I don’t like to cook this is not an easy task. I want to lose a few more pounds, and I'd like to depend on the food I eat to help me feel better, stronger and more energized.

Doesn’t everyone?

So I turned to some trusted friends who are as health-conscious as they are smart. Their advice began a fascinating discussion that clearly begged to be written about.

For some time now I’ve been thinking about the role gluten plays in our diet, and whether I should eliminate it from mine. I heard many anecdotal stories about people feeling healthier without gluten, a protein composite found in wheat and related grains, rye and barley.

Gluten Diet Meal

Despite what Jennifer Lawrence recently said about gluten-free diets being the "new, cool eating disorder" friends living with an autoimmune disease have told me remarkable stories about getting off medications, or regaining the ability to run or walk while living gluten-free. These are amazing stories that I can’t ignore.

Can you?

Most people think gluten-free diets are only for people with celiac disease, but that simply isn’t true. There is such as thing as “non-celiac gluten sensitivity”; people who don’t test positive for celiac disease yet share the same sensitivities to gluten.

As if that wasn’t bad enough, they have reactions that may include headaches, fogginess, joint pain, and numbness. (You can read more about non-celiac gluten sensitivity at The National Foundation for Celiac Awareness website.)

Ten years ago I tried eliminating gluten from my diet at the suggestion of my neurologist. I’ve always battled headaches and they were getting worse. But finding gluten-free products wasn’t easy

Today? They are available everywhere, from health food stores to supermarkets to big chain stores like Target.

I decided to reach out to fellow blogger Kim Austin whose blog, MS Diet for Women, focuses on helping women feel better by using a combination of eating right, exercising and practicing stress reduction. I asked her to guide me on my diet journey. My first assigned task?

“Cut out all gluten, dairy, sugar and meat. Eat a lot of vegetables, fruits, fish and nuts. Drink a large glass of water 15 minutes before each meal.”

Yikes!

I’m preparing myself for my first coaching and motivational session with Kim. I'm going to test these new waters to see if this “diet” (one followed by MANY people in the MS and autoimmune community) helps me feel better and lose more weight.

I’m a little anxious about this next step. I’ve had a lifelong battle with my weight, and as I age I find my MS kicking in a bit more. I'll give this a try and see how I do.

Wish me luck!

Have you ever been on a diet that helped you feel better?

Boomers: Eating Healthier Than The TV Dinners And Tang We Grew Up On

There are words in today's vernacular that we never heard growing up. Words such as:

Boomers

Chicory Coconut Mango Salad

For most boomers, our childhood cupboards were filled with the typical foods of the 1960's:

Boomers

I grew up in a house with a German born father who enjoyed German meats, or wurst, such as knackwurst, bratwurst and also a good salami. On occasion we'd have salami and egg omelettes for breakfast. Don't get me wrong: I enjoyed every bite of them.

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Are your arteries clogging by thinking about this? Thankfully times have changed.

Today, we're more aware of the importance of eating healthy, reading food labels, eating in moderation and staying away from foods high in fat, cholesterol, sodium or carbohydrates. We shun high fructose corn syrup after learning about its danger. We limit or cut out white flour and sugar completely, and use extra-virgin olive or canola oil in our cooking.

We grew up relying on comfort food to make us "feel better" during times of stress. Had a bad date? A quart of Ben and Jerry's will make you feel better. Bad grade on a midterm? A bag of M&M's will melt your troubles away. (Okay, sometimes I still do that!)

Are you a master at talking yourself out of sticking to any diet plan?

"It's only one bowl of pasta, and I promise to be good tomorrow." food

"There's only one piece of bread left so I might as well eat it."

"I had a bad day and deserve this bar of chocolate/ice cream/bagel/fill-in-the-blank."

"I haven't had this in months. This one time won't kill me."

But wait! Hold on. These are the eating patterns that led to my clothes not fitting and feeling less than healthy. As the numbers on the scale were creeping up, my self-esteem was plummeting. I began hating the way I looked and felt.

I needed to make a change. When the people at Jenny Craig approved my request to be a part of their blogging program, I was more than thrilled. I saw this as a chance to recapture my former self by taking back control of what I eat, of feeling emotionally and physically better. Their meal plan, along with eating plenty of fresh fruits and vegetables, drinking a lot of water and finding time for daily exercise, began my new chapter of feeling better about myself.

I'm on my way back...to me. And it feels good to start feeling good about myself again.

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As my Jenny consultant says, it's not the number on the scale that matters but the way you feel about yourself that does. Those are wise words for us all to live by.

*I received a free month on the Jenny Craig program and a discount on food for this review.  There was no compensation.  All opinions are solely my own.  NOTE: Clients following the Jenny Craig program lose, on average, 1 -2 lbs. per week.

Emotional Eating: I'll Have A Bowl Of Pasta With A Side Order Of Ice Cream, Please

Comfort food (noun): Food that provides consolation or a feeling of well-being, typically any with a high sugar or other carbohydrate content and associated with childhood or home cooking. (Source: Google)

Do you have a favorite comfort food that you lean on in times of stress?

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Do you make a big bowl of pasta? emotional eating

Or sit yourself down with a delicious bowl (or two) of ice cream?emotional eating

Or do you want something salty like potato chips?emotional eating

Most people have a favorite food they think will help them feel better for awhile. Food will ease our stress, and every bite will melt away our problems.

That is emotional eating.

Finally, I'm in a groove of eating healthier, learning new ways to deal with stress other than relying on comfort food. I don’t want to slide backward into the pounds I worked very - VERY -  hard to take off. (And it is hard work. Every single ounce of it!)

There's so much in our lives that's not in our control. We all would love to have something that is.

So I’m working hard on fighting my urge to reach for comfort food during times of crisis. It's not always easy. I’m filling my plate with more vegetables, eating more fruit (I love summer fruit and will miss nectarines and peaches), eat at regular intervals (including healthy snacks to keep me from feeling hungry between meals) and drink more water.

According to an article in WebMD, Jane Jakubczak, a registered dietitian at The University of Maryland says that emotions trigger eating instead of the physical symptom of hunger initiating it.

Jakubczak goes on to say that 75% of overeating is caused by emotions.

Wow, that’s a lot of overeating.

I’d be lying if I said I didn’t crave what my husband and son eat at dinner. The aromatic smell coming from their plates – heck, from the oven – are enough to set my palate in motion.  I’ve had bites of their meals and they do taste delicious! And while those bites taste good, I’m also happy to go back to my own delicious meal.

emotional eating

My nightly dessert: Jenny Craig Triple Chocolate Cheesecake. Photo Credit: Jenny Craig

Being on Jenny Craig has allowed me to learn better eating habits, and there's a lot of comfort in that!

What is your favorite comfort food?

*I received a free month on the Jenny Craig program and a discount on food for this review.  There was no compensation.  All opinions are solely my own.  NOTE: Clients following the Jenny Craig program lose, on average, 1 -2 lbs. per week.

 

Six Things I Want You To Know About Multiple Sclerosis And Me

As part of my personal mission as a writer and health advocate, I try to educate others on what it’s like to live with an invisible disease.

Caring for those with invisible illness like MS

Christine Miserandino's Spoon Theory (www.butyoudontlooksick.com):
Spoonies are people that live with chronic illness; theoretically measuring personal daily abilities as much as one would measure the proper amount of spoons needed for an event or occasion, sometimes having an abundance, other times coming up short.

Because sometimes, when people can’t see your disease, they don’t believe you have one. 

By shedding light on our everyday battles, I hope the information I provide is a catalyst for the compassion and tolerance that is necessary toward bridging an understanding gap.

Step back to make way for a better world. 

How you can help someone with MS or other chronic illnesses

1. Don’t feel sorry for us, but do us a favor by learning more about MS.  Then the next time we tell you we're tired or seem to often cancel plans, you’ll have a better understanding why. Learn more about MS here

2. We may not look sick, but our immune system tells a different story.  So the next time we need to occupy a handicapped parking spot, first ask if our placard is registered before you begin shouting at us. We truly appreciate your concern.  But we think you should treat a disabled person with the respect we deserve.

3. Practice compassion and tolerance whenever you see someone with a disability.  Our road is a daily battle of maneuvering the challenges of life.  The things able-bodied people take for granted, such as walking, talking, dressing, exercising, seeing, peeing, pooping and intimacy is considerably more difficult for people with disabilities.

4. Help us keep our self-respect intact.  Imagine falling down in front of a crowd and people begin to whisper that you look drunk.  Or you find yourself attending an event with friends but are unable to keep up with their fast pace.  We don’t enjoy burdening others with our issues. But in our silence, we’d be comforted to know that you understand why our bodies are disobeying us, and that you’ll be willing to slow your pace down to help us feel better about ourselves.

5. Be patient.  We are fearful of the next exacerbation (flare-up) that may wreak havoc on our bodies.  So if you’re trying to make plans with us, and we seem to ask a lot of questions (how long will the event be, where is the nearest parking lot, is the venue accessible) please be mindful that there’s a reason why we’re asking so many questions.  It’s not that we don’t want to see you; it’s simply that we need to take care of our MS.

6. We're often tired.  I know you are too, but I doubt it’s the same kind of fatigue. Because when we're tired, it feels almost like we have a nasty case of the flu, only 1,000 times worse. Every part of our body cries out for a nap, and no matter where we are or what we're doing, we have to find a place to rest. So please understand why we may have to leave a party early or cut our visit short.  In a perfect world we'd love to stay, but our brain is yelling at us to rest.

More MS Resources here

We'll make up for lost time the next time we get together. That's what we're telling our hearts.

Life Happens When You're Busy Making Other Plans

We all know the quote that is attributed to John Lennon saying, "Life is what happens when you're busy making other plans." The quote is brilliant because it's honest and true.

An ordinary day can turn on a dime.

A person rarely reaches my age without learning some hard lessons about life after facing illness, financial struggles, toxic relationships or tragedy. These are inevitable as we age, and the lessons we learn forces us to acquire some survival skills.

If you're wise you'll realize that being flexible about the inevitable twists and turns of life is healthier for you. Because the life we plan and the life we lead are, more times than not, two very different things.

Bending instead of breaking is always optimal.

For instance, over the past week I said farewell to a dear friend.

Life

and cared for a sick one.

Life

I celebrated some exciting family successes,

Life

and was mindful of a few happy moments walking by.

lifeIt's important to remain focused on staying healthy while maneuvering the highs and lows of daily life. Eating right, getting plenty of exercise and practicing a stress-reducing activity (such as meditation) will help keep our bodies happy as we age.

Life

It was the 1980's and big hair was, well, BIG!

Here's what worked for me this week:

Visualizing how I want to look and feel: At 55 I won't feel like I did at 25, 35, or 45. I'm trying to be the best ME I can be at this age. I'm not perfect. I stumble and fall, but I always try to get myself back up to try even harder.

Eating less: I have the Jenny Craig meal plan on my side to help me eat healthy meals, and I add fresh fruits and vegetables to each meal.  This week I ate several meals out, so I'd cut up fresh veggies and carried them in a Zip-Lock bag in my purse. I tried to plan what I'd eat before every outing (a special thanks to Houston's tuna sashimi salad with cilantro viniagrette - a big yum!) Was I perfect? No.  I'm a work in progress. But I'm eating healthier than I was a year ago. That's a step in the right direction!

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Finally met Carol April of ndy (Not Done Yet) and she came bearing gifts and a new friendship.

Feeling better about the way I look: I'm fighting every (single) ounce to get off my body.  It's a battle, and so far I've lost 12 pounds since December.  I don't want to gain any weight back after working so hard to take them off.  That fact continues to motivate me.

I like telling my husband that I'm losing weight: Okay, I admit it.  It feels good to tell my husband my good news.  Do you have any idea what it's like to be married to someone who weighs the same as he did when we met 29 years ago?  He is dedicated to eating right and getting plenty of exercise. He also has great metabolism! This can be maddening at times, so I try to imagine what it feels like to never worry about gaining weight. Ah, Utopia.

What do you do to take care of your health as you age?

*I received a free month on the Jenny Craig program and a discount on food for this review.  There was no compensation.  All opinions are solely my own.  NOTE: Clients following the Jenny Craig program lose, on average, 1 -2 lbs. per week.

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What Did The Scale Say To Me?

This week was different.  This week the scale didn't move.  It didn't go up. It didn't go down. This week the number stayed the same.  My reaction?

scale

At least I didn't gain any weight.

I always thought stress was a bad thing, and in my craziness I'd reach out for a quick antidote for calm by eating something sinful. At least that's how I used to think about stress before I watched this TED Talk from psychologist Kelly McGonigal. She argues that stress is our friend. And now I agree. Stress forces us to face our anxieties and, as Kelly says, "This is my body helping me rise to this challenge." Take a look.  You'll never think about stress the same way again. And next time you reach for that donut, remember what Kelly said.

This week was crazy, and I didn't have time to do much exercise. What a ridiculous excuse! Okay, I did walk a lot of steps the day I was in Manhattan, and I also ran around to many appointments.  But, c'mon, driving around New Jersey isn't exactly exercise. The problem has always been that I go in and out of being totally committed to a daily exercise program. Now that I've lost some weight I want to keep it off, so no more excuses! Maybe I should find my old Jane Fonda video, dust off my leg warmers and pop the tape into the VCR.  Oh, wait, I don't have a VCR (or the leg warmers.)

https://www.youtube.com/watch?v=qNPdBnlOK_U

When people ask me what would be the first thing I'd do if they found a cure for MS, I always say, "Run." One of my fondest childhood memories is running.  Running down the street, around the playground, or alongside my friends.  It's so joyful, so pure, and you feel free. If I could run again, feeling my legs blindly carry me wherever I wanted to go, that would be my Utopia. For now I'll keep walking, despite the MS fatigue and numbness.  Because my abilities are what makes me strong and full of life and oh-so-joyful.  Take a look at the faces of these children from Save the Children and you'll understand what I mean.

Next week, when I step onto the scale at Jenny Craig, I hope the numbers will change. Because this week I'm busy making friends with my stress, adding steps to my day and embracing who I am.

abilities running weight scale

*I received a free month on the Jenny Craig program and a discount on food for this review.  There was no compensation.  All opinions are solely my own.  NOTE: Clients following the Jenny Craig program lose, on average, 1 -2 pounds per week.

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Thank A Nurse This Week As We Celebrate National Nurses Week

This week is National Nurses Week (May 6 – May 12), and to honor these remarkably dedicated health professionals I’d like to take this opportunity to pay tribute to them for the difference they make in all of our lives.

National Nurses Week

The first nurse we learn about is Florence Nightingale, the founder of modern nursing, who came to prominence during the Crimean War when she began tending to wounded soldiers at night.

Today, nurses do so much more than tend to our physical needs. They care for our emotional ones as well by treating the whole person with compassion and a good ear. They not only see the patient's physical wounds, but they also see a human being with deeper needs.

In the world of today’s health care, that is no ordinary feat.

National Nurses Week

To a nurse the needs of the patient comes first despite their own grueling hours, daily physical exertion and the sharing of some traumatic events that would send anyone else to their knees.

Their goal is to make a difference in our lives.

Nurses comfort and heal us, whether nestling closely to a dying patient, hugging a scared child or listening to our worries.

Aside from the nurses who’ve cared for my own health needs, I was blessed to work with many talented ones while working at IOMSN (International Organization of Multiple Sclerosis Nurses.) Let me introduce you to a few:

Dorothea (“Dottie”) Pfohl: Clinical Coordinator of The Comprehensive MS Center of the Department of Neurology at The University of Pennsylvania Health System.

Why do I love Dottie?  Aside from being my Words with Friends warrior, she recently said this to me:

“My signature line is that I am proud to be part of a group of nurses who care FOR and ABOUT people with MS.  But, when folks suggest I am one in a million, I correct them that I am one in over 2,000 MS nurses (IOMSN) worldwide who specialize in MS nursing.”

After being an RN for 50 years, Dottie is a tireless warrior not only in Words with Friends but with every patient she meets.  She’s helped me, and countless others, with her knowledge and compassionate heart.  I will be forever grateful that she is also my friend.

Gretchen Mathewson: Specialty Coordinator, Nurse Practitioner of Neurology at The Mount Sinai Hospital, Corinne Dickinson Goldsmith Multiple Sclerosis Center, New York City.

I recently changed neurologists, which meant I also changed nurse practitioners. During a recent checkup I spent time with Gretchen, who not only gave me time to ask all of my questions, she also gave me advice unlike any other:

“Try to forget you’re disabled. Take up martial arts for balance, and go back to yoga.  Live your life without thinking of yourself as disabled.”

That’s a hard task since I write about disability, but I’m trying to separate myself between Cathy the Writer and Cathy the Healthy Woman who happens to have MS.

Michelle Keating: MS Nurse Consultant, part-time oncology nurse, Mercy Hospital (St. Louis).

What’s special about Michelle? She also has MS. Anyone with MS knows that fatigue can be our number one enemy.  But Michelle keeps moving by helping and caring for others.  As she says:

“What I love about working with those with MS is the ability to educate. To encourage, create hope and provide support for patients, and finally to inspire them to live their own lives with a positive wellness approach. 

NOTE: If you live in the St. Louis area, please check out Michelle’s upcoming fundraising event, MS Evening of Hope.

Claire Mayone is a nurse with Genzyme’s One to One Program.  A veteran of the nursing world for over 25 years, Claire decided to dedicate her skills after her husband’s MS diagnosis.  She now helps others navigate the many challenges of having an unpredictable disease.

Read more about Claire and the MS One to One program, a unique resource and program for people living with MS and their care partners. Members are provided with personal support and access to trained MS nurses over the phone or online. Visit www.MSOnetoOne.com or call 1-855-676-6326.

What positive stories do you have about nurses?

OTHER ARTICLES YOU MIGHT ENJOY:

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A Call To Action: What Social Good Are You Doing This Week?

Last year I attended The Social Good Summit, a three day event held during UN Week "where big ideas meet new media to create innovative solutions."

social good

In order words, it was a place where global leaders ignited our passion to help solve the challenges of the world.

A tall order.

I was deeply moved by many of the speakers. Listening to their voices so filled with passion for causes they believed in was exciting to me, and reminded me of the call to action I wanted needed to take.  I felt physically and emotionally exhausted when I got home.

It was more than worth it.

My biggest regret was being unable to stay and listen to who I believe was (and always will be) the most dynamic, courageous and completely unforgettable person to appear at the conference, Malala Yousafzai.   She is an extraordinary human being, and if you have a minute check out Malala Fund, her organization focusing on providing education to girls in underdeveloped countries who are being denied the opportunity to go to school.

Social good encompasses a lot of territory. There is so much heartache, sadness and tragedy in the world. If I were a Kennedy or a Rockefeller I'd donate billions of dollars to charitable organizations, and purchase acres and acres of land to create reservations to house homeless animals. I'd be unstoppable in my focus to help as many people and animals as I could.

But I'm simply me.

So until I win the lottery or write a Pulitzer Prize winning book, I'll take care of my little corner of the world, one small act at a time.

Tomorrow is World Book Night, a worldwide event that celebrates William Shakespeare's birthday by shipping boxes of new books to volunteers who donate them to light or non-readers.  I am thrilled to be a part of this event, and I'll be donating 20 copies of Doris Kearns Goodwin's book, "Wait Till Next Year" to a local nursing home.  I have been a featured speaker at this particular home on behalf of The National Multiple Sclerosis Society, so I am thrilled to donate these books to such a wonderful place.

social good

In my recent post about about my visit to The Daily Show I spoke of the gifted comedian, Vince August, the warmup for Jon Stewart. I was so impressed with his talent that this past weekend Gary and I went to see Vince perform at Bananas Comedy Club in Hasbrouck Heights, New Jersey. We laughed and applauded while Vince turned his wit on parents who thought a Saturday night comedy show was the perfect place to bring their 14 year old son,  and a bunch of seniors who were brave enough to sit in the front row.

When the act was over, Vince announced he was selling t-shirts to raise money for The North Shore Animal League, a charity near and dear to my own heart.  In memory of his beloved dog, Spike, Vince chose the League because they tirelessly work to save the lives of cats and dogs by rescuing, nurturing and finding loving forever homes for over 1,000,000 innocent animals.  That night he raised $1,200.

A funny man with a heart of gold.

I believe it is our duty to do good in the world, to help those who can't help themselves.  It is our responsibility to do something - anything - to make this world a better place.

One small act at a time.

What are you doing to make the world a better place?

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